Samuel's World

Hi Lynette
I have a Sam too – he’s 10 now
He started tics (mainly had flicks ) when he was 6
last year we thought he had started saying damn it but he mumbled it a lot so we weren’t sure
We hav just been on a big holiday to NZ with him and now he is saying F*** and doing rude gestures.
Reading your website we are probably very lucky because he currently doesnt seems to have ADHD or any other complications
However – his teachers say he never concentrates and we are now very scared and worried for him.

Has anyone looked into the impact of diet and weight relative to TS that you know of?

Good luck to you and keep up the good work

Mark and Mandy Katz ( A very worried set of parents on London).

Hello Mark – thanks for your comments! I hope you had a fairly de-stressful holiday in NZ. We are also dreading the rude words etc with our Sam – his most common at the mo is “you bloody women” which he will repeat if he is annoyed, a word of advice we were given which might be of some help for you is to try and suggest a word to your Sam (or maybe he can think of one himself) which he can compensate and say instead of the rude word. It is a suggestive method which we have been told can work, although it can take a while – its worth a try!!!
As a family we do try and cut out certain foods that do make Sam much worse – coke is definately out! plus any squash drintk with benzote in it – anything sugary is large quantities does make him more frustrated and annoyed. Because Sam is always on the go in a hypo state he burns off his calories very quickly this making him a skinny lad.
I wish you all the best this year especially if your Sam is moving up to secondry school next year – a big move for him and a worrying time for you!!
lynette x

My son Giovanni is 8. His disabilities are numerous. He has been diognosed with bipolar, adhd, autism, odd & ocd. Did I mention he has sensory integration issues. I dearly love the little guy. Buy recently he has been snorting. It’s driving me crazy! I know it;s just a tic and will soon be replaced (or not) with somwthing else, but NOTHING else can be this frustrating!

Hi I have 7 children, 3 have problems but 1 of them, my son Reece who is 8 was diagnosed age 4 with ADHD/Dyspraxia. He has been on medication through out this time but he then started with mild tourettes, I was told not to worry about this! He has been going to another group and a team leader has been paying attention to how he is ect and recently spoke with us regarding what she saw. She seems to think that our son has Aspergers Syndrome. We phoned his Doctor and specialists several times but have not gotten any where. Things are so bad at school he only attends for an hour and a half in a morning daily. He has not at this time been statemented but we are looking into it.
It seems that ADHD and Aspergers are very similar but our son seems worse, he is extremely demanding, loud, never still, the list is endless!
It is hard work at home and if we go out, he is changing and I feel I am letting him down as he cant understand why he is the way he is. He is my son and I have fought to get him this far but feel that due to problems in school mainly that he is not a happy chappy! Do you have any ideas? There are no groups near us right now to attend we did go to parent craft classes but didnt really benefit from them. I read all the knowledge I can find in hope that some how we can find a way to help our son find life a little easier and happier.
How do we deal with this when we feel that we just hit brick walls with specialists??