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Do they exist???? Is there a help line for siblings to be able to make friends and to chat via email about their brothers and sisters.
Grace our daughter of 9 years has massive problems at school because she has no one there who has another sibling with a disorder like Sam - she has often said I wish I could talk to someone who could just say "yes I understand, my brother or sister does that".
I do feel that siblings are forgotten - it is harder for them to adjust I think because the attention seems to be around the one who has the disorder. We try and go out of our way to make her feel that she is having me to herself and her daddy but its not always easy....
Does anyone else have this problem???
lyn xx
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Lyn
I agree, siblings do suffer, and I have yet to find a sibling support group. Our eldest, is now away at University so is not affected, but James (10) has drawn the short straw at home as far as attention is concerned. He is a kind loving little boy who loves to help out with Sam, but I feel sometimes that he is scared to say something, he would probably benefit from having someone in a similar situation to talk to.
Juliex
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Anyone who has a parent or sibling with a medical problem can join Young Carers.. I am assuming they have a young carers in every town. In my case My daughter has Tourette Syndrome, her sister severe ADHD and I have severe Epilepsy (oh what a lucky bunch we are!!) ..my daughter with Tourettes has joined young carers just because she worries about me - they do not have to be carers...just care!! It is great - they take them out for day trips and holidays and give them councelling and workshops on relevant situations like bullying. They also get to spend time with others who know what it is like to live in a household where someone has special needs ..it did not matter that my daughter has special needs herself!!! If they are worried about anything they can ring in confidence for support - I cannot praise them enough - and it does not cost a penny! Siblings need support...sometimes they feel different, pushed out, or even embarrassed as they get older - Young Carers helps them with these issues. Hope this has been helpful.
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Hi
my name is Caitlin and i am working on creating an online support group for children with autistic siblings. I myself do not have autism in my family but i work very closely with a family with an autistic son. I volunteer at a theraputic riding center for children with disabilities and have been very involved in researching autism to see what i can do. i realised that the siblings of the kids i work with do not have someone they can talk to about their situation, and wanted to do something about it. my site is set up very much like this forum, but i do not have much traffic yet. please take a look at it and let me know if you are interested.
Thankyou
thesiblingsofautism.com
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Hi Caitlin, thanks for introducing yourself to everyone, I will add a link from Samuels World to your Sibling Forum so all my readers can find you. I wish you sucess in your new venture and I am sure you will soon have lots of siblings talking to one another!!!
lynette x
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hi
where would you find out about this young carers group as james sister has started to take panic attacks and has had three of them this week it seems to happen when she is with her cousin !!!!! but when you ask her what happened she sayss she is worried about james in case he loses his temper and fights with some boys but her mum is away to talk to her about it as she feels there is something else behind it
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I did have a leaflet for Young Carers but chucked it away because I thought it was only for children who were actually doing the caring themselves, it sounds interesting, I'll have to find out more.
Juliex
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There is a website which is simply called Sibs - I believe which is a national online group. http://www.sibs.org.uk/ Click on the link and it should take you to it!!
Hope this helps
lyn xx
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For anyone out there who has a sibling who might need support, James recently started attending Young Carers and he loves it - cant wait to go. It is like a youth club really and he enjoys playing pool and basketball and they do craft activities too. james helps out with Sam at mealtimes now, because we are trying to get Sam to eat. Most of what he does is restraint I suppose (no fun, but essential sometimes). it also gives him people to talk to who are in the same boat, so to speak and the leaders do some counselling as well. I think james has enjoyed having someone to talk to.
Julie x
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Hi
Sounds good. I think Bracknell may have something like this too.
Theresa
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Samuel's World