Samuel's World Forum

Welcome to Samuel’s World Forum – a place for everyone to share advice, support and friendship within the world of the Autistic Spectrum – A big thank you to everyone so far for reading my articles on this website and for your coments so far.

Questions

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Having received a lot of emails from readers who would like a forum of sorts its finally here, just click on the tab marked Forum and it will take you straight there.

I know I have lots of questions that I have still not managed to find an answer for regarding different topics related to Samuel’s disorders and some of you might know the answers!

Does anyone have a problem with bathtime, teeth brushing or other toilet antics!!

What about school issues, statementing or medication?

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Answers

For every answer or bit of advice that someone can give is giving hope to the one who is asking the question!

This brings a sense of relief and means you can start your day feeling more positive and reassured.

Some of my questions

  • We have just started the statementing process so that Samuel can go to a special needs school nearby because of his constant tic attacks brought on by anxiety due to the everyday changes in his mainstream school – Has anyone managed to achieve a statement since the new process of statementing started???
  • Medication – what a minefield!!! Do you give your child tablets or not, what are the long term side affects, which ones work for Tourettes and ADHD?? Samuel has tried Clonidine due to a very painful complex neck tic but that did not help – he has just started Apriprazole.
  • Rages and Meltdowns!!! – Any strategies are most welcome…..A frightening and upsetting time for Samuel and us.

Your input is much appreciated!

If you feel you can answer one of my questions or you think you might have a question yourself please register yourself and join the forum – the more the merrier!!!

To register and to be able to start posting messages and to join the gang please contact the administrator or me via the comments section on any page in this site and a password will be sent to you.

lynette xx

Clip art licensed from the Clip Art Gallery (www.discoveryschool.com)

Posted on 16 February 2007 by Lynette Coates

seems you have same questions as our family where do you go for help my daughter has just been left on her own with the family trying to cope our selves we do need your forum and i am sure that alot of people will be able to give answers to some of your questions and help with tips on how to deal with things that are simular to all but slightly different i will be watching to see how you get on and if we ever get any answers that help with some situations i wish my grandson could talk to others about ts if there was a page like msn or bebo for ts sufferers this would help them understand themselves better talking to people who are going through the same kinds of things as themselves what do you think

jean wallace | Feb 2, 06:51 PM | 1

Hi Jean

Thanks for your comments regarding a forum – as soon as I get more comments from others I will start the process of launching one!! However it does take up a lot of time and so I will have to have quite an interest from other families to be able to support this venture. It does help talking to others especially for children to possibly be able to talk to others their age. I think they would then be able to relate and understand their disorder more and know they are not alone.
Take Care
lynette xx

lynette | Feb 2, 07:05 PM | 2

we have got another school meeting on wednesday it’s like hitting your head against a brick wall so i have written down question’s i know answers before i ask but i will be asking again till someone can help james with his learning difficulties thank-you for listening best wishes jean

jean wallace | Feb 4, 08:06 PM | 3

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